hey everyone, sorry it’s been so long since we’ve updated you on dai. the first thing i want to start with is how dai is doing. he is doing great. the bone flap surgery seems to be healing wonderfully. and you can just tell that he feels so much better being whole again. he is much more focused and has started to listen and respond to commands again, like lifting his legs and forming words. he is very frustrated being in the hospital and knows that he will be coming home soon. we have moved mom out of the apartment and into a new one right down the street from me. it is a really wonderful place for him. everything is handicap accessible. we also found a wonderful dr. to take care of dai. his name is dr. joseph nguyen. if you live in the san joaquin area and need a great primary care dr., he is one of the rare old school dr.’s that still has compassion and doesn’t look at the patient as an insurance card instead if a person. if you want more information on him, feel free to email me (gina will make sure i get the email) to find out more about him. another great thing is that his office is close to dai’s new place. i can wheel him right down there, which solves the problem of how are we going to transport dai from here to there. unless i want to start to start selling my organs, the cost of arranging an ambulance ride is just out of the question.

although mom and i have been feeling like everywhere we turn, there is a brick wall waiting for us to hit our heads against. however, there have also been so many things that are to coincidental to ignore. yes, we are terrified of bringing him home. as much as i hate having dai in the hospital, there was the comfort of knowing that if something happens, there are doctors and nurses right there ready to deal with the situation. we won’t have that at home. this weekend i will be staying with day for 24 hour shifts learning everything that they do for him. he will be so much happier surrounded by the things he knows and i really feel like there is something that will trigger him. and we will finally be able to get that man in the oxygen chamber. i am also determined to get his ass in the swimming pool. there are so many things that we will be able to do for him at home to stimulate his mind that we can’t do in the hospital. we will be able to start giving him his quality of life back.

another really wonderful thing was the last progress note his dr. wrote. she stated that he seemed to be tracking her with his eyes and was in a “minimally conscience state” as opposed to “vegetative state”. she dictated that he obeyed her request when she said to move his feet and seemed to be doing better every time she sees him. this is the first time we have had a dr. take notice to the progress that we have been seeing all these months. and just the fact that it is now on paper opens up the possibility of so many facilities that have slammed the door on our faces because they just considered dai a hopeless case, which is as far from the truth as possible. so thank you dr. s, for seeing what we have known all this time.

another huge gratitude i have to throw out there is to sonny (POD) and brian (head) for coming to see dai and jumping in feet first to make good shit happen for dai. also the song that fieldy put together for dai. and everyone that put their time and love into it. what a beautiful thing to do for a beautiful person. thank you doesn’t seem to be adequate enough but yea, love, respect and gratitude. what a amazing song.

so, as for now, the plan is to bring dai home in wednesday. everybody keep their positive energy going that he is ready and there are no more episodes. i’m looking forward to staying the night with him tonight. i’m bringing my dvd player and we are going to veg out and watch season 3 of dexter till the sun comes up.

again, i can’t say it enough, thank you angels.

mae

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